Wednesday, June 25, 2008

A peek inside

So, you've all gotten to know our Goose a little better this week, so I thought I'd go ahead and share a little more. Some of you are familiar with my hubby's family, some are not. Turns out his family is chalk full of a syndrome called Aspergers. Several of Benson's aunts and uncles have a lot of the characteristics, though, in their generation there wasn't a diagnosis to give. Benson's mom is self proclaimed to at least have some characteristics, and of Benson's 5 other siblings, 2 are diagnosed and all of them have at least a few characteristics. If I continue to the next generation, of the 22 cousins on his side, there are 8 diagnosed with Aspergers (I think I counted that up right). So, where am I going with this?

Because of the history, I was always aware that it was a very real possibility that we could pass aspergers on to our kids. I never worried about it because most people with aspergers live a relatively normal life and are only considered to be a bit excentric. I didn't think a label would be helpful at all.

Well, this year in school, Goose's's teacher had a few problems with him. He was having trouble staying on task in school, and she also noticed he didn't seem to play with the other kids at recess. To make a long story a little shorter, Benson and I decided it was time to have Goose evaluated to see if he has Aspergers.

Your next question (actually, maybe it came much earlier) may be What is Aspergers? here is the definition as gotten from http://www.aspennj.org/aspergers-syndrome.asp

Asperger Syndrome (AS) is a neurobiological disorder on the higher-functioning end of the autism spectrum. An individual's symptoms can range from mild to severe. While sharing many of the same characteristics as other Autism Spectrum Disorders (ASD's) including Pervasive Developmental Disorder - Not Otherwise Specified (PDD-NOS) and High-Functioning Autism (HFA), AS has been recognized as a distinct medical diagnosis in Europe for almost 60 years, but has only been included in the U.S. medical diagnostic manual since 1994 ("Asperger Disorder" in the DSM-IV).
Individuals with AS and related disorders exhibit serious deficiencies in social and communication skills. Their IQ's are typically in the normal to very superior range. They are usually educated in the mainstream, but most require special education services. Because of their naivete, those with AS are often viewed by their peers as "odd" and are frequently a target for bullying and teasing.
They desire to fit in socially and have friends, but have a great deal of difficulty making effective social connections. Many of them are at risk for developing mood disorders, such as anxiety or depression, especially in adolescence. Diagnosis of autistic spectrum disorders should be made by a medical expert to rule out other possible diagnoses and to discuss interventions.
Characteristics of Asperger Syndrome
Each person is different. An individual might have all or only some of the described behaviors to have a diagnosis of AS.
These behaviors include the following:
1. Marked impairment in the use of multiple nonverbal behaviors such as: eye gaze, facial expression, body posture, and gestures to regulate social interaction.
2. Extreme difficulty in developing age-appropriate peer relationships. (e.g. AS children may be more comfortable with adults than with other children).
3. Inflexible adherence to routines and perseveration.
4. Fascination with maps, globes, and routes.
5. Superior rote memory.
6. Preoccupation with a particular subject to the exclusion of all others. Amasses many related facts.
7. Difficulty judging personal space, motor clumsiness.
8. Sensitivity to the environment, loud noises, clothing and food textures, and odors.
9. Speech and language skills impaired in the area of semantics, pragmatics, and prosody (volume, intonation, inflection, and rhythm).
10. Difficulty understanding others' feelings.
11. Pedantic, formal style of speaking; often called "little professor," verbose.
12. Extreme difficulty reading and/or interpreting social cues.
13. Socially and emotionally inappropriate responses.
14. Literal interpretation of language. difficulty comprehending implied meanings.
15. Extensive vocabulary. Reading commences at an early age (hyperlexia).
16. Stereotyped or repetitive motor mannerisms.
17. Difficulty with "give and take" of conversation.


So, we had a parents only meeting with the psychiatrist today. He spent an hour and a half with us discussing my awesome little Goose. I'm hoping that regardless of the outcome that I will get some help in dealing with some of the problems I've encountered with him. I've realized that Asperger's is not a label. . . it is a medical disorder that can be improved with proper treatment. He may not understand a lot of social cues by instinct the way you and I do, but he can learn. *I* just have to learn how to teach him. Next week the doctor will meet with Goose... I'll keep you informed on how it goes.

8 comments:

The Miller Family said...

Hey Cheryl,
So how do you get your friend's blog websites to show up when they were last updated? I think that's soooo neat. Mind sharing the secrets? :)

Brenda said...

Wow. That was really informative, thanks for sharing and let us know how it goes.

devri said...

Hope everthing goes well and take care..

Rosebud Collection said...

What a wonderful blog and very informative..Will be waiting to hear the report on the little one. Your all in my thoughts..

Karena said...

I don't know if you read on my blog a while ago, but Elden's been diagnosed with SID (sensory integration disfunction). He's been having some occupational therapy and he's been doing well. It's amazing the awareness, the acceptance, and the tools that are available today to help children at an early age. Keep us udpated!

Kenney Crew said...

Good luck with the doctor. I hope you will get some helpful advice on how to work with him. He's such a great boy. Keep us posted.

TamiAbbyKevin said...

Very interesting and informitive.
I see some of those traits in my brother, I always chalked them up to ADD, but some of those are right on. thanks for the info.

Also, Great interviews with your kids!!

Bonnie and Brian Wayne said...

Cheryl,
Thanks for posting that. I would love to hear what kind of dr. you took him too, and if you got more than one opinion, and what was suggested as therapy or treatment.